Normal is the multitude of toys I keep near every seat to try to stop the arching and fighting when I put her in
Normal is the food diary I keep, noting daily Tiddler’s food and drink consumption
Normal is that Tiddler never shows any hunger, has never cried for milk
Normal is that her clothes last for AGES- she is 15 mths old and is still wearing clothes that fit her 3 months ago (!?) 6-9 months
Normal is when feeding Tiddler her bottles we have to pause regularly for her to breathe as she cannot co-ordinate breathing and swallowing on her own
Normal is me being an all singing all dancing buffet every most meal times to entice her to eat
Normal is there not being a flicker of reaction when Tiddler hurts herself. And us to know the sound of her head banging at fifty paces
Normal is an appointment at the hospital at least once a week
And when we are there- knowing the best places to park and how to only pay for an hours parking
Knowing our way round the hospital like the back of our hand
Knowing when the Hospital canteen is open and how there isn’t a lot open on a Sunday
Normal is knowing not to get our hopes up at any glimmer of help / referral to ANOTHER specialist/ impending Geneticist appointment. In fact we start with cynicism and get more positive from there!
Normal is always fearing something bad is around the corner
Whats normal in your family?
