Normal is the multitude of toys I keep near every seat to try to stop the arching and fighting when I put her in
Normal is the food diary I keep, noting daily Tiddler’s food and drink consumption
Normal is that Tiddler never shows any hunger, has never cried for milk
Normal is that her clothes last for AGES- she is 15 mths old and is still wearing clothes that fit her 3 months ago (!?) 6-9 months
Normal is when feeding Tiddler her bottles we have to pause regularly for her to breathe as she cannot co-ordinate breathing and swallowing on her own
Normal is me being an all singing all dancing buffet every most meal times to entice her to eat
Normal is there not being a flicker of reaction when Tiddler hurts herself. And us to know the sound of her head banging at fifty paces
Normal is an appointment at the hospital at least once a week
And when we are there- knowing the best places to park and how to only pay for an hours parking
Knowing our way round the hospital like the back of our hand
Knowing when the Hospital canteen is open and how there isn’t a lot open on a Sunday
Normal is knowing not to get our hopes up at any glimmer of help / referral to ANOTHER specialist/ impending Geneticist appointment. In fact we start with cynicism and get more positive from there!
Normal is always fearing something bad is around the corner
Whats normal in your family?
Ah yes, I can identify with a lot of these. It does, in many ways, get easier the longer you do it (I promise). You find your feet and realise that you're running (and even skipping and jumping sometimes). Thanks so much for sharing, food is an issue for a lot of parents, and it's great to show what real issues children can have x
ReplyDeletethat it gets easier with time is *exactly* what I needed to hear... thank you! xx
Deletewe redefine normal don't we?
ReplyDeletewe accept or new normal and take one day at a time, but even then we fear for the future of our children.
i hope that there is a little bit of joy in your normal too?
over from #definenormal at renata's
Hi, thanks so much for your comment and for stopping by.. of course there is a lot of joy in my normal- I fear my post may have been a bit negative... this was not intended...
DeleteHello, Hopped here from Renata's blog. Thanks for sharing this. I love starting with cynicism and getting more positive from there! Definately an attitude I share :)
ReplyDeletethank you Sally for visiting and thanks for the lovely comment!
DeleteI've been trying to comment on this for agoes... blogger hates me (well I think it hates my iphone actually). Anyway, I'm finally on my pc and I wanted to say how interesting I found this post. Interesting as it piqued my interest about Tiddler and the sort of child she is, I guess little glimmers of a child make you want to know more!
ReplyDeleteThanks for sharing, I hope to persuade you to join in again and share some more too :-)
thank you for stopping by! Have really enjoyed this blog hop, will definitely share more again
DeleteDon't think I've actually read your blog before Missus but have found it a real eye opener. You stay strong :o) I am now your newest follower! Sara at nothingbutwordsandwine.blogspot.com
ReplyDeleteHey Sara thanks so much for your lovely comment, really made my morning. Welcome to the blog!
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