I have some news. I am pregnant. 15 weeks or 16 weeks. Already losing count which is probably a bad sign!
We have been pretty shocked, but now am getting excited about expanding our little family. There are obviously fears and concerns that what happened to Tiddler will happen again, and no-one can tell me it won't.
You see, they don't know why Tiddler stopped breathing or has had the feeding, muscular etc etc issues that she has had. They don't know for sure it is genetic, although they think it is, and neither do they know what pattern any inheritance of this gene may take.
We have no reason to believe this baby will be worse affected and no-one has ever told us not to have another child. We are awaiting the results of some DNA testing on Tiddler but apart from that will muddle along as normal.
Everyone has been pleased to hear our news. A couple of people thought we were lying- yes that's right it's all an hilarious ruse??!! I had one very odd encounter where it became obvious that the woman thought we were having another baby to get a healthy one this time... " I'm not being horrible but...." Errrr yes, quite. I genuinely believe that she wasn't being horrible but it says a lot to me about her ignorance. Not exactly embracing difference is it? Sadly I am sure she is not the only one that thinks like this...